{"id":2085,"date":"2021-03-19T13:22:51","date_gmt":"2021-03-19T12:22:51","guid":{"rendered":"http:\/\/grupo.us.es\/healthterritory\/?p=2085"},"modified":"2021-03-25T13:27:41","modified_gmt":"2021-03-25T12:27:41","slug":"does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey","status":"publish","type":"post","link":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/","title":{"rendered":"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey"},"content":{"rendered":"<h2 class=\"c-article-title\" data-test=\"article-title\">Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey<\/h2>\n<p>&nbsp;<\/p>\n<p>Marco Garrido-Cumbrera, Jorge Chac\u00f3n-Garc\u00eda, Victoria Navarro-Comp\u00e1n, Jordi Gratac\u00f3s, Sergio Sanz-G\u00f3mez and Eduardo Collantes-Estevez on behalf of the Atlas working group<\/p>\n<p>Current Rheumatology Reports. 2020. 22:22.<\/p>\n<p>&nbsp;<\/p>\n<h3><strong>Purpose of Review<\/strong><\/h3>\n<p style=\"text-align: justify;\">International guidelines for axial spondyloarthritis (axSpA) suggest that patients benefit from becoming members of patient associations. However, the scientific evidence for this is limited and unconvincing. The objective of this study was to evaluate the differences in sociodemographic characteristics, lifestyle habits, and patient-reported outcomes (PROs) between axSpA patients belonging to patient associations versus those who do not.<\/p>\n<h3><strong>Recent Findings<\/strong><\/h3>\n<p style=\"text-align: justify;\">Out of 680 patients, 301 (44.3%) were members of a patient association. A significant proportion of association members were found to engage in physical activities considered appropriate to their condition (48.2% vs. 39.8%, p=0.03),and smoked significantly less compared with their non-association counterparts (22.7% vs. 33.6%, p=0.02). In addition, despite having longer disease duration, and receiving similar treatments, members of associations reported significantly lower disease activity (BASDAI 5.1 vs. 5.8; p&lt;0.001), less functional limitations (Functional Limitation Index 26.4 vs. 28.6; p&lt;0.05),and a lower risk of psychological distress (GHQ-12 4.9 vs. 6.5; p&lt;0.001).<\/p>\n<h3><strong>Summary<\/strong><\/h3>\n<p style=\"text-align: justify;\">The results of this study suggest there are beneficial effects of belonging to a patient association for managing axSpA, since those member patients experience better lifestyle habits and PROs than those who do not so participate. Rheumatologists should encourage patients to enroll in patient associations for a holistic approach to managing their condition.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>Enlace al art\u00edculo:<\/strong> <a href=\"https:\/\/link.springer.com\/article\/10.1007\/s11926-020-00897-5\">doi.org\/10.1007\/s11926-020-00897-5<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey &nbsp; Marco Garrido-Cumbrera, Jorge Chac\u00f3n-Garc\u00eda, Victoria Navarro-Comp\u00e1n, Jordi Gratac\u00f3s, Sergio Sanz-G\u00f3mez and Eduardo Collantes-Estevez on behalf of the Atlas working group Current Rheumatology Reports. 2020. 22:22. &nbsp; Purpose of Review International guidelines for axial spondyloarthritis (axSpA)&hellip;<\/p>\n","protected":false},"author":7,"featured_media":2088,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[50],"tags":[],"class_list":["post-2085","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-articulos","category-50","description-off"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.1.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey - Health &amp; Territory Research<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey - Health &amp; Territory Research\" \/>\n<meta property=\"og:description\" content=\"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey &nbsp; Marco Garrido-Cumbrera, Jorge Chac\u00f3n-Garc\u00eda, Victoria Navarro-Comp\u00e1n, Jordi Gratac\u00f3s, Sergio Sanz-G\u00f3mez and Eduardo Collantes-Estevez on behalf of the Atlas working group Current Rheumatology Reports. 2020. 22:22. &nbsp; Purpose of Review International guidelines for axial spondyloarthritis (axSpA)&hellip;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/\" \/>\n<meta property=\"og:site_name\" content=\"Health &amp; Territory Research\" \/>\n<meta property=\"article:published_time\" content=\"2021-03-19T12:22:51+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2021-03-25T12:27:41+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/grupo.us.es\/newthterritory\/wp-content\/uploads\/2021\/03\/Patient-organization-1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1131\" \/>\n\t<meta property=\"og:image:height\" content=\"762\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Jos\u00e9 Correa Fern\u00e1ndez\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Jos\u00e9 Correa Fern\u00e1ndez\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/\",\"url\":\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/\",\"name\":\"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey - Health &amp; Territory Research\",\"isPartOf\":{\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/grupo.us.es\/healthterritory\/wp-content\/uploads\/2021\/03\/Patient-organization-1.png\",\"datePublished\":\"2021-03-19T12:22:51+00:00\",\"dateModified\":\"2021-03-25T12:27:41+00:00\",\"author\":{\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/#\/schema\/person\/6edfd257e38aaa36b2d51b61392dfb7b\"},\"breadcrumb\":{\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#breadcrumb\"},\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#primaryimage\",\"url\":\"https:\/\/grupo.us.es\/healthterritory\/wp-content\/uploads\/2021\/03\/Patient-organization-1.png\",\"contentUrl\":\"https:\/\/grupo.us.es\/healthterritory\/wp-content\/uploads\/2021\/03\/Patient-organization-1.png\",\"width\":1131,\"height\":762},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Portada\",\"item\":\"https:\/\/grupo.us.es\/newthterritory\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/#website\",\"url\":\"https:\/\/grupo.us.es\/healthterritory\/\",\"name\":\"Health &amp; Territory Research\",\"description\":\"Interdisciplinary Research Group of the University of Seville\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/grupo.us.es\/healthterritory\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/grupo.us.es\/healthterritory\/#\/schema\/person\/6edfd257e38aaa36b2d51b61392dfb7b\",\"name\":\"Jos\u00e9 Correa Fern\u00e1ndez\",\"sameAs\":[\"http:\/\/grupo.us.es\/healthterritory\/\"],\"url\":\"https:\/\/grupo.us.es\/healthterritory\/author\/pepe\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey - Health &amp; Territory Research","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/","og_locale":"es_ES","og_type":"article","og_title":"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey - Health &amp; Territory Research","og_description":"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey &nbsp; Marco Garrido-Cumbrera, Jorge Chac\u00f3n-Garc\u00eda, Victoria Navarro-Comp\u00e1n, Jordi Gratac\u00f3s, Sergio Sanz-G\u00f3mez and Eduardo Collantes-Estevez on behalf of the Atlas working group Current Rheumatology Reports. 2020. 22:22. &nbsp; Purpose of Review International guidelines for axial spondyloarthritis (axSpA)&hellip;","og_url":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/","og_site_name":"Health &amp; Territory Research","article_published_time":"2021-03-19T12:22:51+00:00","article_modified_time":"2021-03-25T12:27:41+00:00","og_image":[{"width":1131,"height":762,"url":"https:\/\/grupo.us.es\/newthterritory\/wp-content\/uploads\/2021\/03\/Patient-organization-1.png","type":"image\/png"}],"author":"Jos\u00e9 Correa Fern\u00e1ndez","twitter_card":"summary_large_image","twitter_misc":{"Escrito por":"Jos\u00e9 Correa Fern\u00e1ndez","Tiempo de lectura":"1 minuto"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/","url":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/","name":"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey - Health &amp; Territory Research","isPartOf":{"@id":"https:\/\/grupo.us.es\/healthterritory\/#website"},"primaryImageOfPage":{"@id":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#primaryimage"},"image":{"@id":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#primaryimage"},"thumbnailUrl":"https:\/\/grupo.us.es\/healthterritory\/wp-content\/uploads\/2021\/03\/Patient-organization-1.png","datePublished":"2021-03-19T12:22:51+00:00","dateModified":"2021-03-25T12:27:41+00:00","author":{"@id":"https:\/\/grupo.us.es\/healthterritory\/#\/schema\/person\/6edfd257e38aaa36b2d51b61392dfb7b"},"breadcrumb":{"@id":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#breadcrumb"},"inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/"]}]},{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#primaryimage","url":"https:\/\/grupo.us.es\/healthterritory\/wp-content\/uploads\/2021\/03\/Patient-organization-1.png","contentUrl":"https:\/\/grupo.us.es\/healthterritory\/wp-content\/uploads\/2021\/03\/Patient-organization-1.png","width":1131,"height":762},{"@type":"BreadcrumbList","@id":"https:\/\/grupo.us.es\/healthterritory\/does-belonging-to-a-patient-association-is-of-help-for-patients-with-axial-spondyloarthritis-results-from-the-atlas-survey\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Portada","item":"https:\/\/grupo.us.es\/newthterritory\/"},{"@type":"ListItem","position":2,"name":"Does Belonging to a Patient Association Is of Help for Patients with Axial Spondyloarthritis? Results from the Atlas Survey"}]},{"@type":"WebSite","@id":"https:\/\/grupo.us.es\/healthterritory\/#website","url":"https:\/\/grupo.us.es\/healthterritory\/","name":"Health &amp; Territory Research","description":"Interdisciplinary Research Group of the University of Seville","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/grupo.us.es\/healthterritory\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Person","@id":"https:\/\/grupo.us.es\/healthterritory\/#\/schema\/person\/6edfd257e38aaa36b2d51b61392dfb7b","name":"Jos\u00e9 Correa Fern\u00e1ndez","sameAs":["http:\/\/grupo.us.es\/healthterritory\/"],"url":"https:\/\/grupo.us.es\/healthterritory\/author\/pepe\/"}]}},"wps_subtitle":"","_links":{"self":[{"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/posts\/2085","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/comments?post=2085"}],"version-history":[{"count":3,"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/posts\/2085\/revisions"}],"predecessor-version":[{"id":2090,"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/posts\/2085\/revisions\/2090"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/media\/2088"}],"wp:attachment":[{"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/media?parent=2085"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/categories?post=2085"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/grupo.us.es\/healthterritory\/wp-json\/wp\/v2\/tags?post=2085"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}